This message is so simple yet it gets forgotten. The people living with the condition are the experts.” - Michael J Fox, actor, advocate for Parkinson's Disease. 


100 Poems from People Affected by ALS will be a collection of poems from people with a lived experience of ALS. It will bring together poetry from people living with the disease, their loved ones, as well as medical practitioners and researchers dedicated to the ALS community. 

The collection aims to capture the diverse perspectives, deep insights, and authentic emotions of those navigating life with ALS. By offering an unfiltered portrayal of their experiences, the collection seeks to foster understanding, empathy, and awareness.

All profits from the book will be dedicated to ALS research and patient care initiatives, contributing to the ongoing fight against this challenging condition.